Not a member of Chordoma Connections yet?
Well, we're glad you're here!

Chordoma Connections is a private, online community where you can connect with other individuals affected by chordoma to exchange information, share experiences, and support one another. This intuitive and user-friendly platform was built to address the specific needs and desires we’ve heard from listening to the chordoma community and will make it easy to find and engage with others who share similar experiences, interests, and concerns. 

As a member of Chordoma Connections you will be able to:

  • Get your questions answered, either by posting a new question or searching past discussion threads
  • Join sub-groups relevant to who or where you are (e.g. caregivers only, patients only, chordoma community in Canada, etc.)
  • Share your experiences, and hear about how others have dealt with similar situations
  • Give or get emotional support
  • Access educational resources
  • Receive the latest news and updates from the Foundation 
Joining is free and takes just a few moments. Click the Join button above, tell us a little about yourself, and we'll create your account.
We'll see you in Connections!